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Old 12-08-2006, 09:23 AM   #1 (permalink)
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Default Back from a long hiatus!
Man, it feels good to be back finally. As some of you know, I was diagnosed last July with Cluster Headache Syndrome which has been described as 100 times more painful than migraine and the worst pain any human will ever endure and still survive. Up till just recently, I was getting anywhere between 6-10 headaches a day with 3-4 of them being severe enough that I will literally beat my head against any hard surface I can find at the moment. I pace, rock back and forth, scream, and yes even cry.

The daily meds I was taking weren't helping much so back in October I sought out a second opinion at the Mayo Clinic in Jacksonville. After a few days of being treated like a patient on the Fox show "House", the neurologist there confirmed a diagnosis of CHS, but further defined it as "chronic", meaning I've had these headaches for more than a year with no more than a consecutive 2 week remission period. He started me on prednisone that I tapered down for 16 days and verapamil (a heart medication) for maintenance.

I immediately saw improvement as my headaches dropped to about 4-6 a day with only 1-2 being severe enough I was wishing I was dead. I've gradually been getting better with this new med, so much better that I finally was able to get back into the gym this past Monday after being out of it for more than 6 months. My last severe headache was 2 days ago and that's a record even for me in the last year. Yesterday I had my first almost completely pain free day in months. So far today, I haven't even had a glimmer of a headache. I'm really hoping that I've finally got this beast tamed and put back in his cage where he belongs.

I've really hated taking all the pain meds that I've been on for over a year. Some of them are extremely scary as everything I've got is a either a Schedule IV narcotic or some form of barbituate. I also carry my intranasal Imitrex and an O2 tank with me alsmot everywhere I go. I feel like the walking wounded!!!

Here's hoping this is all behind me now and I can my life back on track!
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Old 12-08-2006, 09:28 AM   #2 (permalink)
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Old 12-08-2006, 09:30 AM   #3 (permalink)
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Good to hear from you, Jamie. Hope you continue to feel better.
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Old 12-08-2006, 10:04 AM   #4 (permalink)
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Glad things are looking up mate - you'll get there in the end - better living through Chemistry!
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Old 12-08-2006, 10:07 AM   #5 (permalink)
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Holy shit, man. Welcome back to the living. Raising a protein shake to continued progress!
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Old 12-08-2006, 10:08 AM   #6 (permalink)
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Good to hear from you, Jamie. I hope things continue to move in a positive direction.
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Old 12-08-2006, 10:10 AM   #7 (permalink)
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It's great to hear that you're getting better, Jamie. Welcome back.
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Old 12-08-2006, 10:11 AM   #8 (permalink)
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Damn Bro, I am gald to hear things are moving in the right direction and hope they stay that way!

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Old 12-08-2006, 10:12 AM   #9 (permalink)
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Thanks to everyone except Nick, you little shit!!!
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Old 12-08-2006, 10:14 AM   #10 (permalink)
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WOW. Sorry for all the pain! My son has migrains but nothing like what you have been through. Here's hoping for your continued wellness!!!

Welcome back!!!
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Old 12-08-2006, 10:15 AM   #11 (permalink)
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Good to have you back...
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Old 12-08-2006, 10:16 AM   #12 (permalink)
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Quote:
Originally Posted by Bond007
Thanks to everyone except Nick, you little shit!!!
Can you feel the love? :p

Yipee...... Scooter's back!
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Old 12-08-2006, 10:23 AM   #13 (permalink)
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Originally Posted by FlyinM
Can you feel the love? :p

Nick's gotta get a girlfriend before he can "feel" any "love"....
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Old 12-08-2006, 10:24 AM   #14 (permalink)
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And, I see my post count has suffered from being away so long....I'll have to fix that!
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Old 12-08-2006, 10:32 AM   #15 (permalink)
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And, I see my post count has suffered from being away so long....I'll have to fix that!
We'll just start a Bond Q&A thread for your post whoring pleasure.
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Old 12-08-2006, 10:34 AM   #16 (permalink)
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Old 12-08-2006, 10:35 AM   #17 (permalink)
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Old 12-08-2006, 10:36 AM   #18 (permalink)
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Old 12-08-2006, 10:37 AM   #19 (permalink)
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Old 12-08-2006, 10:37 AM   #20 (permalink)
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Old 12-08-2006, 10:38 AM   #21 (permalink)
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Old 12-08-2006, 10:54 AM   #22 (permalink)
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Nick's gotta get a girlfriend before he can "feel" any "love"....
Not really..... you can 'love' yourself. Think back to when you were his age.....
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Old 12-08-2006, 10:59 AM   #23 (permalink)
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Jamie, good to have you back in the JPF fold. Personally I think this CH thing was all a plot by Daniel Craig to get you out of the spotlight while his picture got released. Bastard.
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Old 12-08-2006, 11:01 AM   #24 (permalink)
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Not really..... you can 'love' yourself. Think back to when you were his age.....
WHAT GOES ON IN THE CLUBHOUSE STAYS IN THE CLUBHOUSE!!!!!!!!!!
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Old 12-08-2006, 11:01 AM   #25 (permalink)
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Not really..... you can 'love' yourself. Think back to when you were his age.....

Gee, I only have to think back to yesterday.....Ooops!

Did I really just say that????
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Old 12-08-2006, 11:02 AM   #26 (permalink)
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WHAT GOES ON IN THE CLUBHOUSE STAYS IN THE CLUBHOUSE!!!!!!!!!!

That rule is getting a bit tired!
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Old 12-08-2006, 11:10 AM   #27 (permalink)
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That rule is getting a bit tired!
so are ninja's hands....
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Old 12-08-2006, 11:17 AM   #28 (permalink)
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so are ninja's hands....

Ouch!!!
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Old 12-08-2006, 11:22 AM   #29 (permalink)
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Gee, I only have to think back to yesterday.....Ooops!

Did I really just say that????
Only you know how you like it.

Trading one 'headache' for another?
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Old 12-08-2006, 11:29 AM   #30 (permalink)
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That rule is getting a bit tired!
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