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Old 07-08-2007, 06:35 PM   #1 (permalink)
DKing
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Default Gluten Intolerance

I am pretty sure I am gluten intolerant, I have been working with a crazy voodoo-doc (long story) and its one of the things we have narrowed down. I am in the process of doing some research myself, but I am just wondering if anybody has any helpful info/links for me.

There is an assload of stuff I can't have, which is pretty lame. On the plus side its making me much more careful about my diet and actually causing me to try and plan meals, which is always a good thing.

Thanks for any help ladies and gents,

Danny
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Old 07-08-2007, 06:39 PM   #2 (permalink)
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That is a miserable intolerance to have, enough that you will want to nail down that it is actually the thing. Good luck with it all. Rob
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Old 07-08-2007, 08:13 PM   #3 (permalink)
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Hi Danny,

Sorry to hear about your situation. The first thing I would suggest (though you probably already have) is to have a test for Celiac Disease, to make sure that you are in fact
Non-Celiac Gluten Sensitive (NCGS). Beyond that as far as I have heard the only "treatent" is avoidance of gluten which is quite hard. However, if it is gluten intolernance (and not a food allergy- which is bascially what Celiacs is) then the only problem with injesting gluten would be discomfort. (bloating, gas, abdominal pian..etc??)

Sorry I do not really have anything to add other than something you probably already know. Just a good luck on this one , Danny, and keep us posted your progress.

Peter



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Old 07-09-2007, 01:35 AM   #4 (permalink)
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Not just that. If gluten sensitivity irritates the lining of the bowels it can disrupt the membrane and make it pass unwanted proteins . Look for leaky gut syndrome.

Then you can get all kind of funky stuff.

When I eat glutinous foods the following can happen:
- joint pain
- memory loss
This is exacerbated (?) when combining it with dairy. Prolonged use is worse than just incidentally eating it. You can be fine one day and then 2 days later, get severe gastric discomfort and more pronounced symptoms.

The immune system just gets a bit out of whack. Weird huh?

I still haven't figured out why it affects short term memory so much. Perhaps that's more a blood sugar thing?
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Old 07-09-2007, 09:54 AM   #5 (permalink)
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Danny:
FWIW there's a gluten free bakery down this way and I'm sure there are more on the west side of town (what don't they have out there?) Sorry to hear you're dealing with something unusualbut glad to hear you're getting it figured out so you can get a handle on it.
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Old 07-09-2007, 02:08 PM   #6 (permalink)
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dan,

not being able to consume gluten would suck, but it's not the end all. Especially considering that you have a background in training, and i'm assuming you eat a decent amount of protein as it is. There are lots of ways to get around eating gluten products, and it will help you key your diet in if you are allergic and have celliac disease.

Eziekel makes a good brand of bread that is sprouted, and doesn't contain gluten or flour. It's all i ever use in term of breads anymore, and it's really quite good. Cinnamon raisin bread from them is really good. You can also eat quinoa which is gluten free, and also a complete protein.

My best friend's fianace has celliac's disease, so she can't consume anything that's really processed. At first it sucked for her, but now, she seems like she's doing a lot better with it. Her diet used to suck, but now she has to eat lots of fruits.

For you, chances are that you won't be able to consume eggs/milk, so your protein sources are going to have to come from meats. This shouldn't be a big difference from the way you're eating really, you're just going to have to load up on veggies, and find a way to get your fats. I'm pretty sure you can consume oils that aren't nut based, so stuff like olive oils, coconut oils, etc.

Hopefully this helps
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Old 07-10-2007, 01:14 AM   #7 (permalink)
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What does egg consumption have to do with celiac disease? Avoiding dairy OK, but eggs? Also not everyone is sensitive to nuts so cutting out everything before knowing where you're sensitive to.
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Old 07-10-2007, 02:15 AM   #8 (permalink)
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So you find it odd the eggs are associated with celiacs, but you dont question dairy?

They can both present as issues to celiacs.
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Old 07-10-2007, 02:22 AM   #9 (permalink)
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Gluten intolerance is NOT the same as celiac disease.
I know that some have problems with all these things, but it doesn't mean that everyone with gluten intolerance has to avoid them all.

To really find out one would have to do an elimination diet in which you start with foods that are known to be safe for even the most severe celiac patient. And then start adding foods back in 1 at the time.
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Old 07-10-2007, 04:37 AM   #10 (permalink)
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You said

"What does egg consumption have to do with celiac disease? Avoiding dairy OK, but eggs?"

To which I said

"
So you find it odd the eggs are associated with celiacs, but you dont question dairy?

They can both present as issues to celiacs."

Quote:
Gluten intolerance is NOT the same as celiac disease.


Celiacs is an intolerance to gluten, but not all gluten intolerance is celiacs.


Quote:
I know that some have problems with all these things, but it doesn't mean that everyone with gluten intolerance has to avoid them all.

To really find out one would have to do an elimination diet in which you start with foods that are known to be safe for even the most severe celiac patient. And then start adding foods back in 1 at the time.
Quote:

But you are quite happy to say dairy?
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Old 07-10-2007, 05:32 AM   #11 (permalink)
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While gluten-intolerant people may not be celiac, the treatment is the same (avoiding all gluten). And a gluten-intolerant person who continues to eat gluten, is putting him or herself at risk of developing full-blown celiac disease.
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Old 07-10-2007, 05:53 AM   #12 (permalink)
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Cycomiko you win: dairy doesn't need to be part of a gluten intolerance. But for quite a lot of gluten intolerant folks it is included. I've barely met a gluten intolerant person who can't have eggs.
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Old 07-10-2007, 07:42 AM   #13 (permalink)
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Like the other members are saying, think optimistically and use it as an opportunity to improve your diet.
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Old 07-10-2007, 12:35 PM   #14 (permalink)
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i would think the easiest way to see if you are allergic to milk or eggs or nuts is to cut them out of your diet entirely, and then slowly introduce them back in individually to see which ones, if any, you are allergic to. That's what i would do, considering the symptoms aren't the most pleasant, and i would want to stop them right away
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Old 07-10-2007, 04:52 PM   #15 (permalink)
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Quote:
Originally Posted by ljk
While gluten-intolerant people may not be celiac, the treatment is the same (avoiding all gluten). And a gluten-intolerant person who continues to eat gluten, is putting him or herself at risk of developing full-blown celiac disease.
Celiacs is ultimately a genetic disorder. You can go from passive/potential celiacs onto symptomatic celiacs but unless you have the specific genetic haplotype, you dont have celiacs. But you can have non-celiac gluten intolerance...
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Old 07-10-2007, 05:03 PM   #16 (permalink)
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Quote:
Originally Posted by Espi
Cycomiko you win: dairy doesn't need to be part of a gluten intolerance. But for quite a lot of gluten intolerant folks it is included. I've barely met a gluten intolerant person who can't have eggs.
Just because you have not met any does not mean they do not exist.
Do a research search for egg albumin and celiacs. You will find that both egg and whey antigens are measureable in serum of celiac subjects, predominantly uncontrolled (as that is when gut inflammation allows passage of larger antigens).
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Old 07-10-2007, 05:06 PM   #17 (permalink)
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Quote:
Originally Posted by Alcoholiday
i would think the easiest way to see if you are allergic to milk or eggs or nuts is to cut them out of your diet entirely, and then slowly introduce them back in individually to see which ones, if any, you are allergic to. That's what i would do, considering the symptoms aren't the most pleasant, and i would want to stop them right away
Seperating the effects of Type 1 Hypersensitivities (allergy) from other hypersensitivitiespieces/intol erances is difficult to achieve from food rotation. True allergy should be diagnosed by testing, rather than rotation, because if you sensitise youself a bit and get a full anaphylatic response on readministration, it wont be nice
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Old 07-10-2007, 05:07 PM   #18 (permalink)
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To the OP

Go to a real doctor, get sent to a gastroenterologist for full diagnosive testing.
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Old 07-10-2007, 05:07 PM   #19 (permalink)
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Wow this has gotten pretty popular. Thanks for the support folks.

To answer the questions, I don't have celiacs, so that portion, at least for me is a non concern. Also eggs and milk don't bother me, at least not to a measurable degree, although I don't eat much of either.

And in some ways it has been a blessing for me. It has really gotten my diet back on track, which before this was pretty scary. Although there is gluten in just about everything, which sucks!

Thanks again folks, and if anyone has any more tips/advice