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Originally Posted by tkinsley
Does she have Meniere's disease, Egham? That's a hard problem to have. I'm sorry that you are still going through this after three years. Geesh.
Tina
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Hi Tina -
I appreciate your kind thoughts.
Her local ENT did not think so until fairly recently. Her symptoms and test results didn't seem to support that diagnosis until her huge flare-up a couple of months ago. I asked him directly about this 3 weeks ago and he said that he now thinks that she has a variant of Meniere's.
Since then, the Chapel Hill specialist he referred her to has preliminarily diagnosed her hearing loss as due to a dehiscent cochleas. I haven't found much on-line about it, but one of the descriptions I read suggests that the symptoms build over time. Both of us have lots of questions for the specialist when we see him tomorrow morning and I'm interested in finding out how that impacts the Meniere's diagnosis and possible treatment approaches.
The past 3 years have been rough on her. She's been hit with vertigo attacks while on vacation, attending out-of-town business meetings, and even just sitting at her desk. They're unpredictable, with just a couple of general exceptions, and debilitating.
Right now, in her words..."I want a new head".